Saturday, March 31, 2012

Update 3/31/12

Today is the St. Baldricks fundraiser being held in Pipers honor in Athens. Because of Pipers code on Thursday night, Chad and Linley had to turn around and return to the hospital, much to Linleys dismay. Thankfully my father flew up to Memphis yesterday and kissed on Piper then took Linley back with him to Atlanta so she could participate in St. Baldricks. This is only one example of how blessed we continue to be with support.

Pipers night was quiet. They had to add her back on a small drip of dopamine because her blood pressures were dropped. And the oscillator came loose early this morning causing us all some fright but Piper still was able to hold her own while they bagged her and replaced the tubing. They adjusted her NG tube and attempted to adjust her foley catheter but she is simply too swollen. She remains fever free.

The CBC from 4:00am labs today showed that Pipers leukemia blasts are at 79%. Only 24 hours ago they were found to be 30%...her cancer is rampant. Everything is tied together and everything is painful to watch.

I want to hold my girl again. I miss hearing her little voice and I miss feeling her limbs wrapped around me. While I still plead for a miraculous healing, I also plead that God will show us mercy. Watching Piper in this state makes me anxious...I'm thankful today only for the simple truth that Gods grace is sufficient for the pains I have.

Tomorrow I will receive the grace needed to deal with whatever happens.

Today I will lean and sob.

24 comments:

  1. My heart is breaking. My tears flow for you. My prayer is for peace, grace and mercy. Mercy, sweet Lord.
    For Sus and Chad:
    Precious Lord, take my hand
    Lead me on, help me stand
    I am tired, I am weak, I am worn.

    Through the dark, through the night
    Lead me on to the light
    Precious lord, lead me on
    Take me home.

    I still believe in miracles.
    Much prayer from my family,
    NeeCee Delk

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  2. We sob with you. Praying God's peace and comfort uphold you as you lean. The Millers all love you all.

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  3. Needhams, We don't know each other, but our hearts are tied. I hear your pain and my tears flow with yours. Know that more people than you think possible are praying for you, lifting you up in the Father's presence. We don't know what tomorrow will bring, but we will all be there with you, praying, weeping, rejoicing, whatever comes. We will all be with you.

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  4. Oh how I wish God would choose now to swoop down and take us all home...... Precious Lord, show Susanna, Chad, Linley, and Precious Piper your grace, your mercy....make yourself very real to them right now. Hold them all in your arms.
    Heavy hearts, hurting tears......we are by your side in spirit, when we can not be there in person. Please know you ALL are never far from our daily thoughts.
    Many, many hugs, tears, and prayers.
    Charlie, Erin, and family

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  5. Sweet sweet baby girl ... so beautiful & brave. Praying, crying & trusting in the continued mercies of the one who is "near to the broken-hearted" & "mighty in power". Love to all...

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  6. Praying. May the God of peace that surpasses all understanding be near to you all and Piper today.

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  7. Prayers for a miracle of healing, prayers for peace and mercy. Much love to this sweet baby.

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  8. I have been led to your story by links on a friend's facebook page. My heart is aching for you. As Piper hovers between your arms and the arms of Jesus, I am praying for all of you. No matter whose arms she finds herself in, she will be surrounded by love. May all of you find peace, strength, and understanding through the difficult minutes, hours, and days ahead.

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  9. Words cannot begin to express the sadness I feel for your family. All I can think of is what our pastor says at baptisms: "We love our children, Lord, but we know that You love them even more." I can't comprehend how much He loves them, knowing how much I love my children...but I pray you find some comfort in knowing that the Lord loves Piper even more than you do. May He comfort and bless you and your family.

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  10. struggling to come up with any words which can remotely do justice to what your family must be going through at this time.being honest i wont even try other than to say the thoughts and prayers of the robinsons in woking uk are with you all at this time.we pray for that miracle .

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  11. As a mother, I cannot imagine your pain, but my heart breaks for you....

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  12. Prayers continue. Love and light surrounds you.

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  13. My oldest sister just sent me your blog address. I will be praying for mercy, and peace. 'Perfect Peace' comes to mind: Though I may not calm the storms around you, you can hide in Me. Prayers that you will all feel the warmth of God's presence and know His conscious smile upon your lives even and especially in the midst of this dark providence. He is good and His love abounds!

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  14. i'm continuing prayers for your family and for piper.

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  15. You are on our minds throughout the day, and we are praying fervently for you and your sweet angel.
    Love, the Morecrafts

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  16. Prayers for all of you from all us. We didn't make it to the Blind Pig Tavern in time to see Linley, but got to see her picture. What brave and beautiful girls they both are!

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  17. Your family has been in my thoughts and prayers today. I can't imagine what you are going through.I will continue in prayer for Piper & have asked friends to pray also.

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  18. praying for you and your family.

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  19. SO much love for you being poured out in prayers all over Athens... We take you with us throughout our days.. The Coles

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  20. Praying fevently for peace for you all and that you can feel God's arms wrapped around you and holding you so very tight.

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  21. Precious ones.....all I can muster to say is, Jesus.....my heart is so heavy for you that I can only whisper His sweet name and beg for a miracle for precious Piper.

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  22. I have been following you for some time and cannot imagine your pain. I pray for you mostly, I know the Lord has Piper's back. I pray for your strength, I pray for you courage. ,i pray that you have peace and understanding. You don't know me but I will be here if you need me. I hope you can find comfort in what I am about to tell you. My now 8 year old daughter was maybe 2 1/2 lying in bed with me. Now I must tell you I am not a very religious person, I can't quote the bible at all. But laying there with her, she turned and said to me "mommy, I knew you" I said huh? She stared right in my eyes, into my soul and said " mommy I knew you before you were born" it gave me chills. Not until a couple years later did i learn that my daughter spoke God's word to me. I hope you find comfort in this. Piper too knew you before you were born, in God's kingdom. She will meet you there again.

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  23. Piper is an Angel! Just remember it will be in the blink of an eye! There is the most beautiful song that's out by an artist from Hawaii named Isreal Kamakawiwo,ole called somewhere over the rainbow/ What a wonderful world! It's a timeless version that will bring smiles and tears! We will pray for your family and piper:) and just remember in the blink of an eye the sweetest rejoice will be:) somewhere over that rainbow!

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  24. Praying for your family - that you will never doubt that God's glory is shining through this most difficult situation. Your faith is a light for all to see.

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