Tomorrow is it. The big day. My sister said she was sure I was terrified but, honestly I am not. One thing that I have learned over and over the last few years is that the known is scary enough to not stress over the unknown. Of course I am not thrilled with what we will be putting Piper through but I am even less thrilled with the alternative of letting leukemia take over and win.
No one can tell me what time this big ordeal shall take place so I cannot tell you a time or anything to pray. I imagine it will be a little like a normal day of dirty diapers, eating tater tots and playing in the playroom when all of a sudden the nurse shall walk in with a little bag of marrow and the transplant will begin. I believe it can take about 3 or 4 hours and Piper will be closely monitored the whole time. She will also probably smell like either creamed corn or garlic due to the preservatives that are used. And it will definitely be anti climatic...but hopefully it will be the beginning of a life free from leukemia.
Please sweet Jesus.
At this moment I am cuddled up to Miss Linley after a busy day at the Ga Aquarium with Chad. We attempted to make it one last celebration prior to the rigors of healing with transplant and the very real possibility of side effects keeping us from Linley for this short season. And can I just tell you what a wonderful mother I have? She is the only other person who is able to handle the details of Piper in such a way that Chad and I are able to walk away for a day and not stress. Our small family relys on her immensely and she never fails us.
Piper herself is hanging in there. She ran fevers last night off and on so she was reaccesed about 1:00 am so they could draw cultures from her port....she was a trooper about being woken with a needle coming at her chest. The entire night was just rough as she had monitors going off all night and a loud nurse and lots of poop and the getting a blood transfusion somewhere around 3:00am. We added insult to injury when she had a NG tube placed when she woke up because her appetite is slowing down and they prefer her gut to be moving, even just a little. Piper will also begin TPN, which is total nutrients given through her CVL in addition to the nutrition given through her NG tube and into her little digestive tract. She is still snacking and drinking some but it won't be enough and will probably stop all together once mouth sores and the other side effects kick in.
Good times ahead of us, I tell you.
I finally made it to Target to purchase the adaptor for my cameras SD card and my ipad. This means that I will be adding pictures to my posts from here on out. I will also be catching up on a lot of old posts and pictures from the last few weeks. What I won't be doing is sleeping, seeing much of Linley or completing thoughts...but I will be moving Piper towards a Cure and that will help it all even out in the end. ,