Do you just love how faithful I have been with my promise to blog each and every day? Yep, I bet you do.
Pat of the reason I'm not so up to date on things is the fact that not much is going on. When I left on Saturday night to spend Christmas with
Linley, Piper was just roaming the halls and playing in the playroom and pooping slot. All normal two year old behavior...well, normal two year behavior when one has cancer and is in the process of ridding their little body of those pesky cells. Her appetite is slowing down and that is to be expected. Not that I blame her because the food at the hospital leaves much to be desired and she is not allowed to eat fresh fruits or veggies or anything brought from home or from a restaurant. So basically nothing good and really, what's the fun in eating if it's nasty? She will use an ng tube when she stops eating, whether because of lack of appetite or from mucositis and such. Not looking forward to that but desperately looking forward to completeing the process.
I have thourally enjoyed my time with Linley. She held me to the promise of sleeping under the Christmas tree on Christmas Eve, thankfully I was so exhausted I was not even phased and slept like a child. We were able to FaceTime with Daddy and Piper this morning while opening presents and that was just wonderful...the rest of the day consisted of church, then IHOP for lunch since we totally forgot about a Christmas meal in the hustle and bustle of juggling the girls, and the rest of the afternoon was filled with me doing little crafts and Linley playing with her toys. We managed to watch three different christmas shows and did a great amount of cuddling on the couch. It was very relaxing but we missed the craziness of two little voices and the chaos that a busy family creates. Not a perfect Christmas but a good one.
For some crazy reason I drand 2 coca-colas for lunch and am still awake at 3:43am. But I have rearranged my living room and parts of my bedroom, I have cleaned and cleaned and I have organized anything out of place that I can get my hands on. A million thanks to Catherine for helping me out and inspiring me...thanks friend.
Tomorrow after a list of errands and laundry we will go back to Atlanta and stay at the Ronald McDonald thoughout the week since Linley is out of school as is Chad. We will take turns being with each girl and hopefully once school is back in progress we won't all be so tired already and will be able and ready to take on transplant. I sound very certain of myself today but truly it is scary. I have a friend from the support group I am on for these amazing infant leukemia kiddos and her daughter is currently in the midst of transplant. She has completed all her treatment and is in the hospital playing the waiting game. The last few days have been very difficult and I have spend a lot of time praying for Paxten as well as her faithful mommy and daddy. Check out her caringbridge because she is an incredibly adorable little girl who deserves her own cure.
And leave a note...we like reading notes, guys....its encouraging and just plain nice to know that not only are people watching our struggles but also wanting to support us. So show Paxten some support and a million thanks for rolling with us. Even when I have insomnia but an incrediblly clean apartment at 4:00 am. :)