Tuesday, February 1, 2011

Darth Vadar is a poor roomate.

Ask me. I know. Piper and Darth (her oxygen mask that she wont keep on and we try to lean against her) are very happy bedbuggies but mercy, are they loud.

Fortunately her oxygen seems to be better during the day so we are more free to roam and play without either being bed ridden or attached to an oxygen tank. And at the moment that I write this she has not had any sort of a fever all day. And strangly enough, Piper has been incredibley happy all day, even semi participating in occupational therapy and physiacl therapy. There were multiple times through out the day that she was able to support herself in a sitting position and we will be continuing to work at getting her legs strong enough to bear weight. Her smile is back, as is her (currently dirty) hair and her diaper rash is gone.

I am feeling pretty optimistic that she is beginning to turn a corner. Pipers ANC levels rose so signifigantly (up from 1340 to 4400) that all of her leukemia oncologists chose to forfeit the bone marrow aspirate tomorrow in agreement that nothing is pointing towards a relapse so why put her through a painful and unnessecary procedure. They will be doing a CT scan tomorrow at some point to see if any sort of a fungal infection may show up and explain these fevers, although the CMV also can cause fevers. I think its a classic case of covering ones butts.

So today has been busy, my sister came to visit so that kept me laughing and happy. Which is a good thing because Piper can not have anything to eat after midnight tonight and tomorrow will probably be a wee bit more tiring.

All in all...doing pretty good.


  1. Wow! She sounds like she's doing a lot better. And her picture is so cute! I think this is the first one I've seen where her hair is actually growing and she's smiling. I know it's been horrible to be stuck at CHOA, but I hope that she is finally turning a corner, too. -Becki

  2. What a welcomed change that beautiful little smoke is!

  3. Praise the Lord!!! So glad to hear of improvement!! And I have to say, Darth Vadar is pretty darn cute. :)

  4. Praise the Lord!!! Still praying Sus!

  5. So happy that she didn't have to go thru that bone marrow aspirate. Her smile is beautiful. We'll be there tomorrow around 3 pm.....would you be up for a visit?

  6. You don't know me, but I read Pipers updates through a friend's facebook. Please know that some major prayers are being lifted to Heaven on your behalf from people you don't even know. Glad to hear of the improvement. I'm praying that this is just the beginning of major improvements coming her way and yours as well. Thank you Lord for your healing power!

  7. Sus,
    Your baby girl is BEAUTIFUL!!! The first thing that I noticed was her smile and then the hair. My heart rejoices with you as she improves more every day. These improvements are answers to prayers lifted around the world! Hugs to you, my friend.