We are now on day 27 of the 36 day Induction phase. The next phase is called the Induction Intensification phase and will last 28 days total. Initially we were led to believe that we would be here at the hospital full time for the first phase and then here-home, here-home, here-home for the remaining 5ish months. Apparently this is not the case and we are uncertain as to when, if ever we will be able to bring Piper home until she achieves remission at the end of these very long 6 months which should be mid-March.
With the frustration of this news we have had to re-think alot of plans we had brewing. Chad will be attempting to defer his enrolling in UGA for a semester until we are done with the first 6 months. We will "live" with my parents until then to keep Linleys world as normal as possible and really, whats the point of renting a place we may or may not be able to sleep at??? Chad will be going back to work pretty soon as we still have expenses and bills. And Linley will hopefully, be able to do a few sleepovers here at the hospital so that I can feel a small semblance of how my family should be.
The good things that I am trying (sometimes fruitlessly) to remember are that Chad has a very flexible boss who will work with him and his schedule. Linley has a wonderful and supportive preschool that she will now be able to finish out the year at. We have a great network of friends and family that want to help us out. And most of all, Piper has made it through the first phase without contacting any infections. This alone is an awesome acheivement and we are so proud of her little, puffy, sweet self.
I have been asked to please let you all know specifically what to pray for and I am sorry that I keep forgetting to do so. I guess I am still not quite able to comprehend all the prayers that are being thrown up for my family. So we are asking for continued prayer that her diaper rash does not worsen. That we would be able to go home soon to recharge. That UGA will defer Chad without any complications. And that God will continue to pour His peace out on us.