Monday, March 15, 2010


I am racking my brain to think of the updates that I know everyone wants and yet somehow, things are wonderfully easy. There simply is not much to report. Piper began Continuation 1 today with a Lumbar Puncture called a Triple Interthecal ( Arac, Methotrexate and hydrocortisone) is given to kill off any straggling leukemic cells hiding in her Central Nervous System. If you remember back in the beginning, the Drs were not able to find any and we continue to keep her that way with Triple Interthecals done monthly. She did well and woke pretty happy. We gave her Zofran throughout the day to keep her from nausea and throwing up and so far so good. Dr. Lew continues to be optimistic and encouraged by her progress and response to treatments. Just what we hope to hear! We were in and out by 1030pm and spent the rest of the day chilling out with Linley. Chad had class so I grabbed Linley from preschool and headed to the pharmacy. Our pharmacy is an old fashioned kind of place with an ice cream bar so Linley got a cone, Piper fell asleep in her stroller and we walked about 2hours. Picking flowers, chatting, playing "freeze" whenever we saw a school bus. It was a beautiful way to spend the day.

On Thursday Piper gets her cast taken off! I will be so happy to finally, after 6 months of one thing or another, to stick my kid in the bath and really let her just play. No CVL, tape, casts or press and seal...just a dirty little girl getting clean and playing with one very patient big sister. Piper gets 5 days of steroids beginning tomorrow so we are getting ready for her to be a wee bit fussy. OK, who am I kidding. The girl will probably be glued to my hip but I am just happy its only 5 days as opposed to 2 weeks.

All is quiet here tonight. As always, thanks for the support!

1 comment:

  1. SO thankful that things have been "wonderfully easy"!! That's exactly what I want to hear! :)