...and I am not sure how to describe it. Piper hasn't been herself since mid-May. She has been fussier, clingier, less hungry and really tired. I am trying to not worry about that horrid disease coming back, but I confess that is the first place my mind goes.
Unfortunately, on Monday morning Piper goes in for an early morning sedation where she gets 3 types of chemo targeted to her Central Nervous System into her spine, followed by 10 doses of steroids over 5 days. In the past she has usually had about 3 or 4 weeks of happy Piper to heave me through the roughness that is Steroid Week, but not this time. To say I am concerned about all of us is an understatement.
Please pray that she begins to eat again, stops throwing up and acts in some way like a normal 1 year old for a little while. I dont know whether this is the leukemia, the side effects of chemo, her being a fussy little girl or teething still. Its difficult because she cannot tell me where she hurts or how she is feeling...she just fusses. And I just worry. And really, none of us are feeling too perky with all of this going on. I did speak to the Aflac doctor this afternoon and voices my concerns but she felt confident that Piper could wait to be seem on Monday. Her counts are strong (5,800) and her CBC looked good at her appointment on Wednesday. So unless she gets a fever we wait until Monday and I corner her ocologist and pepper him with questions.
Hang in there. I'm anxious to hear what you find out, so I can only imagine what you're feeling! Praying for you tonight.
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