Tuesday, August 31, 2010
Calm before the storm
Well, we are here. Not in a horrible room. Got one of our favorite nurses. Its sort of like a vacation if I dont think too much. (you know, clean towels and free shampoo)
I was pleasantly surprised to find out that Piper will only get the eye drops every 6 hrs not every 4. I know this isnt a big deal but that is a possible 6hrs straight of sleep for me. I usually get about 5 per night so that is definitlye being added to the whole vacation feel. The cafeteria food manages to balance it all out though.
My sister Hannah came with me to the hospital to help out, or really just to crack me up. She is thrilled to have been able to park in the physicans parking lot since the normal one was filled up. She spent the better part of the afternoon talking about finding one of those white coats to wear back out to play the part in full, but really she just forgot her car was a lime green saturn and that is so not doctor-ly and would not fool anyone.
Before entering the world that is Childrens Healthcare of Atlanta and the Aflac unit we got some yummy curry from the best place in the world, Tin Drum. Delicious for me and Piper as well. And after she polished off some curry she snacked on some Hot Tamales. Seriously. Who has sensitive taste buds? Not my little girl.
So here we wait for the next 3 doses. Not really exitedly but ready as we will be. I do have a prayer request for you guys. As I have said before, most of the families we met at the beginning of Pipers treatment have since moved onto all outpatient or simply finished up. One family is still very much embroiled in a fight that is wearing the whole family down. Little Aidyn was diagnosed with a germ cell cancer when he was 14 months old. I am not sure of all the details but basically it continues to come back. He is now 2 and a half and has been through many, many chemo treatments, radiology and still the cancer is growing. They have recently put him on an incredibleyl difficult regime for the next 6ish weeks that involves all high doses of chemo, another round of radiation (if he is strong enough) and very few breaks. They are praying that he makes it through all of this and that it does the job. The regime has never been done on anyone but adults. As you can imagine his mother is worn and tired and so very full of grace. Please pray with me tonight for that peace only our God can give. And an extra measure of hope and strenghth as well.
I think that is all. This is the calm that is before the storm. I appreciate all the prayers for both our family but also for Aidyns.