I have logged on twice since Tuesday but seriously, after a clinic appointment there is so much information flooding my brain that I shelved it all. And then there was Thanksgiving, and my brother and his wife and little girl visiting and then life and then next thing I know I am getting calls and emails wondering about Piper and her possible NG tube.
Sooo...as of right now its a no. Praise God. Sort of. Piper finally gained a third of a lb. Is that good? Well, her primary oncologist Dr. Bergsagel was into see us and he feels like as long as she is not losing weight, she will be fine as long as we continue doing what we are doing. Apparently it often takes 2-3 months on Maintenance before children begin feeling better. So hopefully food therapy will begin and be helpful and Piper will begin to trend upwards with her weight. While I am thrilled to avoid an NG tube I am seriously over the whole syringing formula into her little body. And that formula is EXPENSIVE. But, she definitely has more energy and is happier getting all those calories. So onward and upward we go.