Shockingly, after 36 months of chemotherapy, radiation, a transplant and all the jazz that goes with a leukemia diagnosis, my Piper has never needed an ICU visit.
But today she did. Her oxygen, while it had been holding its own with the assistance of the nasal cannula and some good old oxygen air flow, today began to peter out. She stated pretty quickly and turned purple as Chad called for the nurse. I was home with Linley doing schoolwork when Chad texted me to come over. By the time Linley and I had made it across the parking lot and towards Pipers room she had already been moved to the ICU.
Since she's been here shes been moved to pressurized oxygen, which forces air into her fluidy lungs and keeps her from having to work so hard to breathe. This is working and her blood pressure and heart rate have begun to be a little closer to normal. They are giving her lots of lasix to help her to urinate and keep the fluid off of her...she has perked up a bit and did some movie watching and coloring with Linley which helped Chad and I's tears a little bit.
At this point they feel like she is stable and if she continues to improve they will be able to send her back to the regular Bmt unit for normal monitoring. The cultures from the last few days continue to be positive for this bacteria but once they had a name for it, they were able to change her to the antibiotic most beneficial to fight it off. We shall see. Our biggest prayers are that she can kick the infection, that she can rid her body and lungs of the fluids and the need to be here and that this problem will not keep her from receiving the IL2 shot tomorrow...unfortunately the line is thin as they decide how much her body can handle and how they can continue to fight the angry beast that is leukemia.
So now wait. You'd think I'd be good at this by now, but I am not. What I really am is at peace...scared to pieces but confident that God is handling it. He's surrounded us with amazing doctors and nurses and family that come running at a moments notice as well as an old childhood friend who doesn't mind visiting and supporting us.
We are in capable and loving hands.